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| Cystic Fibrosis | ||||||||||||
| What is Cystic Fibrosis?? | Thank you for your interest in "CF" and for clicking on the ribbon!! | |||||||||||
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A recessive genetic mutation in the protein CFTR which regulates the movement of salt through cell walls. |
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| See purple side bar to learn a few basic facts about CF. | ||||||||||||
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Causes poor growth, sinus & lung infections, difficulty breathing and infertility in males. | The story of my daughter and how we got involved with Cystic Fibrosis will be coming one day. | ||||||||||
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Only affects about 30,000 people in America, about 60,000 worldwide. | |||||||||||
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Makes it difficult to retain nutrients like fat and protein and therefore harder to keep weight on. | |||||||||||
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Most common in Caucasians but has no racial, economic or social boundaries | |||||||||||
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Can ultimately lead to the need for a lung transplant. | |||||||||||
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New "miracle" drugs make it possible to lead normal life but they cost $250,000 per year. | |||||||||||
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More money is need for research to make "CF" stand for "Cure Found" | |||||||||||